Sqk saying hello to our early evening visitor taken Jun 07, 2017 @ 21:08
Asking friends with Lily – our new re-homed 5 month old kitten…. taken Jun 10, 2017 @ 19:27
Lily by herself. My voice of cat but apparently is going to be DH’s friend as makes for his lap mainly … taken Jun 10, 2017 @ 19:28
Think DH has a new companion while at computer… taken Jun 10, 2017 @ 19:31
DH now has two cats competing for his chair when he leaves it …. taken Jun 10, 2017 @ 19:37
Quite happy thank you… Lily curled up on DH’s feet … taken Jun 11, 2017 @ 22:38
“Do you really want to read?” taken Jun 11, 2017 @ 22:41
Two comfortable cats … Lily & Henry-cat…. taken Jun 15, 2017 @ 12:37
Daft cat earlier today…. taken Jun 24, 2017 @ 14:11
This week has been interesting for many reasons. Second emergency visit to GPs resulting in a drive to the Children’s Assessment & Treatment Unit (CAT) in the main hospital in the next city over. This was at 1840 on Wednesday so managed to catch T who promptly cancelled his hygienist appointment and came home to meet Sqk & I. I had already been on phone to my other Brownie leader apologising as having planned the meeting left her with the Brownies by herself with 20 mins notice – didn’t even have chance to pass material over. Once in hospital waited a while to be seen (busy evening for children’s surgery team) and then there were various other hiccups which resulted in Sqk having bloods taken (& cannula inserted) at nearly 0100 before we finally moved to the ward after 0200. He had managed to fall asleep on me at about 2100 and then moved to bed once T got back with stuff for us both. The blood test was not fun as he was woken up, moved and then sat on Daddy’s knee while a cannula was inserted into his hand. He did scream a bit but then fell back to sleep on CAT bed.
Continue reading “A starting diagnosis”
Pointing out the train that we will be travelling behind later.., taken Apr 08, 2017 @ 08:48
And we are off… taken Apr 08, 2017 @ 10:06
Sitting in sun waiting for food taken Apr 08, 2017 @ 12:24
Glorious in the sun…. taken Apr 08, 2017 @ 12:25
Bluebells out in the woods on campus. May I just say again how much I love the environment of my new work ️ taken Apr 11, 2017 @ 11:38
I wandered where my laptop slipcase was. Apparently it is now a cat bed …. taken Apr 11, 2017 @ 22:50
The red rhododendron is in full flower and looking gorgeous… taken Apr 13, 2017 @ 12:55
Sat in caravan with asleep Sqk. Start of holidays… taken Apr 13, 2017 @ 21:28
Our current view out of the caravan. St Mary’s Lighthouse in Northumberland/Tyneside… taken Apr 17, 2017 @ 15:18
Driving the Metro train…well pretending to anyway…. taken Apr 20, 2017 @ 16:31
Still pretending… on way back to caravan … taken Apr 20, 2017 @ 16:33
Scooting in the rain to try to wear out energy… taken Apr 21, 2017 @ 17:07
My current view….. at least he is in his front I suppose…. taken Apr 21, 2017 @ 17:56
Glorious sunset out of caravan window… taken Apr 22, 2017 @ 20:50
My current lapful….. taken Apr 24, 2017 @ 18:01
I wrote on Twitter yesterday about how much both T & I feel we have reconnected with Sqk during this week and a bit away. Sqk and I travelled to train station at Escape in Castleford on Maundy Thursday to meet T after work. Having eaten we then drov north to a caravan site north of Richmond where our caravan is pitched on a seasonal pitch. We stayed here till Easter Monday and then went a bit further north to a site on the cliff to close to St Mary’s Lighthouse in North Tyneside.
We have been lucky in getting a PASW who gets things moving relatively speaking. From first meeting Sqk in January she got us places for sensory assessment and applied to ASF for funding – and this was all within a couple of months or so 🙂 We attended a training with Sarah Lloyd (local specialist occupational therapist & play therapist) a week and a half ago for a full day on Wednesday. Was us, our PASW and Sqk’s afternoon TA – usually it is SENCO from school but she had been to the training in January due to us going to the same person as @TwoBoysandUs has with her Boyo and the boys being in the same school. So we took TA instead who found it really rewarding – her comment was she wishes she had known a lot of this stuff 3 years ago when Boyo started (she has worked with him as well as Sqk).
No post bar weekly Instagram posts.
In fact last time I posted was mid December. Since then both T & I have changed jobs – January was an interesting month and indeed it is only this week just gone that we are fully into the new routine as before half-term my sister was picking Sqk up from school with her two and taking him to Mum’s on a Friday evening. I have had to change my work at home day as all my teaching this semester falls on a Friday. So now I drop Sqk at school and pick him up on a Thursday after discussions with childminder as this is one of her busiest days. Busiest is Wednesday but that is never a good day in university terms as stuff often happens on a Weds afternoon although my new place of work appears to schedule teaching even then. Ok even with this I am still going into work for noon every other Thursday for research group meeting and this next week I am going in to cover a PG session on embedded software for a colleague who is in Germany.
Our PASW is getting stuff done – ASF funding permitting we are starting sensory work later this month and she is talking to school. We had a meeting this Thursday (was a busy day what with osteopaths, research meeting & this) at school with PASW, SENCO, class teacher and I. A pretty fruitful discussion ensued with me discovering that Sqk has had full-time 1to1 support since they came back after Christmas (would have been nice to be told!!!! Although I have wondered). Also our PASW is good friends with Sqk’s original SW who knew the birth family from well before his birth and has basically said she really doesn’t think there is any need to think about FASD. We still wander due to facial features, small head and ADHD like behaviour. His concentration span on anything he is not interested in is horrendous and as for fine motor control…. However his academic ability appears to be good when he can be sat down – they had a comprehension test the other week where his TA acted as a scribe. His teacher said he did very well – better than a lot of his peers and he is one of the youngest in his year 1 class. He loves reading and story time and enjoys maths so we are all determined to try to get the strategies in place to deal with his wonky brain wiring as he has capability to go far if we can get him to engage.
Socially he is liked by all his peers and is always surrounded by children in playground. Even this morning at soft-play he has made a little friend (probably 3/4) and they are happily running around together. Emotionally he is probably 4 on a good day, 2 on a bad one and somewhere in between most of the time. In some ways had we deferred his entry he might be better off but there is a very good reason we did not and school know this and are grateful for it. Academically it was right decision it is just those emotional skills.
We all agreed that the biggest issue we need to deal with is the ‘stealing’ (food mainly from teachers desks when he sneaks back into school) and lying about not doing something when he blatantly has. These are common issues at school and at home along with the disappearing in the blink of an eye. As the SENCO says he is not a runner but is very good at hiding. We are working with him by saying he must respond when someone calls his name unless it is in hide and seek. Getting better at this at home but it is work in progress. Going to try social stories but need to find some non-autistic aimed ones as he needs the colour and shading that autistic children do not need.
On the positive side Sqk is making progress and hopefully with everything we are all doing we will get there. He is on a modified behaviour policy (yeah). Even when he spat at TA last week it was handled by time in at break – sat on a chair in classroom with teacher present and a sand timer counting down the time. I will admit that having another adopter in the school who has already fought many of the battles has made life so much easier and I am so grateful for that. Plus Sqk copes with me working which is beneficial for my own mental health particularly thanks to the loveliness which is my new campus. So looking forward to the better weather and ability to go walking when I need to think. This is the view out my new office window…