I wrote on Twitter yesterday about how much both T & I feel we have reconnected with Sqk during this week and a bit away. Sqk and I travelled to train station at Escape in Castleford on Maundy Thursday to meet T after work. Having eaten we then drov north to a caravan site north of Richmond where our caravan is pitched on a seasonal pitch. We stayed here till Easter Monday and then went a bit further north to a site on the cliff to close to St Mary’s Lighthouse in North Tyneside.
We have been lucky in getting a PASW who gets things moving relatively speaking. From first meeting Sqk in January she got us places for sensory assessment and applied to ASF for funding – and this was all within a couple of months or so 🙂 We attended a training with Sarah Lloyd (local specialist occupational therapist & play therapist) a week and a half ago for a full day on Wednesday. Was us, our PASW and Sqk’s afternoon TA – usually it is SENCO from school but she had been to the training in January due to us going to the same person as @TwoBoysandUs has with her Boyo and the boys being in the same school. So we took TA instead who found it really rewarding – her comment was she wishes she had known a lot of this stuff 3 years ago when Boyo started (she has worked with him as well as Sqk).
No post bar weekly Instagram posts.
In fact last time I posted was mid December. Since then both T & I have changed jobs – January was an interesting month and indeed it is only this week just gone that we are fully into the new routine as before half-term my sister was picking Sqk up from school with her two and taking him to Mum’s on a Friday evening. I have had to change my work at home day as all my teaching this semester falls on a Friday. So now I drop Sqk at school and pick him up on a Thursday after discussions with childminder as this is one of her busiest days. Busiest is Wednesday but that is never a good day in university terms as stuff often happens on a Weds afternoon although my new place of work appears to schedule teaching even then. Ok even with this I am still going into work for noon every other Thursday for research group meeting and this next week I am going in to cover a PG session on embedded software for a colleague who is in Germany.
Our PASW is getting stuff done – ASF funding permitting we are starting sensory work later this month and she is talking to school. We had a meeting this Thursday (was a busy day what with osteopaths, research meeting & this) at school with PASW, SENCO, class teacher and I. A pretty fruitful discussion ensued with me discovering that Sqk has had full-time 1to1 support since they came back after Christmas (would have been nice to be told!!!! Although I have wondered). Also our PASW is good friends with Sqk’s original SW who knew the birth family from well before his birth and has basically said she really doesn’t think there is any need to think about FASD. We still wander due to facial features, small head and ADHD like behaviour. His concentration span on anything he is not interested in is horrendous and as for fine motor control…. However his academic ability appears to be good when he can be sat down – they had a comprehension test the other week where his TA acted as a scribe. His teacher said he did very well – better than a lot of his peers and he is one of the youngest in his year 1 class. He loves reading and story time and enjoys maths so we are all determined to try to get the strategies in place to deal with his wonky brain wiring as he has capability to go far if we can get him to engage.
Socially he is liked by all his peers and is always surrounded by children in playground. Even this morning at soft-play he has made a little friend (probably 3/4) and they are happily running around together. Emotionally he is probably 4 on a good day, 2 on a bad one and somewhere in between most of the time. In some ways had we deferred his entry he might be better off but there is a very good reason we did not and school know this and are grateful for it. Academically it was right decision it is just those emotional skills.
We all agreed that the biggest issue we need to deal with is the ‘stealing’ (food mainly from teachers desks when he sneaks back into school) and lying about not doing something when he blatantly has. These are common issues at school and at home along with the disappearing in the blink of an eye. As the SENCO says he is not a runner but is very good at hiding. We are working with him by saying he must respond when someone calls his name unless it is in hide and seek. Getting better at this at home but it is work in progress. Going to try social stories but need to find some non-autistic aimed ones as he needs the colour and shading that autistic children do not need.
On the positive side Sqk is making progress and hopefully with everything we are all doing we will get there. He is on a modified behaviour policy (yeah). Even when he spat at TA last week it was handled by time in at break – sat on a chair in classroom with teacher present and a sand timer counting down the time. I will admit that having another adopter in the school who has already fought many of the battles has made life so much easier and I am so grateful for that. Plus Sqk copes with me working which is beneficial for my own mental health particularly thanks to the loveliness which is my new campus. So looking forward to the better weather and ability to go walking when I need to think. This is the view out my new office window…
Bedroom been redecorated. Mum reckons first time since summer of 97… now to paint fitted furniture… taken Feb 19, 2017 @ 19:26
Love working somewhere with a campus cat. Came to visit me at coffee time today taken Feb 21, 2017 @ 16:51
Curtains and new bed covers now in place 🙂 taken Feb 21, 2017 @ 16:52
Sqk’s homework – well part of it. Sentences dictated to Mummy for describing picture using adjectives… taken Dec 11, 2016 @ 15:47
I sit down for 2 minutes while Sqk occupied & someone else decides they need attention… taken Dec 11, 2016 @ 16:45
Stage 3 of cake done…decoration will happen once icing is dry and Sqk can help… taken Dec 21, 2016 @ 11:25
Sqk has more cards than Daddy & I combined. Thanks to being at school. Had to put them on shelves as would mean no more space on our string… taken Dec 22, 2016 @ 13:47
#legocityadvent Day 1: a pair of snowmen. Well snowboy & snow fireman…. taken Dec 02, 2016 @ 08:32
#legocityadvent Day 2: a rocking fireman to join snow fireman. taken Dec 02, 2016 @ 08:34
#legocityadvent Day 3: yesterday. Rocking fireman got microphone & speaker. taken Dec 04, 2016 @ 09:31
#legocityadvent Day 4: rocking girl fireman joined by boy fireman. taken Dec 04, 2016 @ 09:32
#legocityadvent Day 5: fireman gets a snowmobile which he shows off to rocking firewoman. taken Dec 05, 2016 @ 17:46
#legocityadvent Day 6: our fireman friend likes his new snow-plough particularly as snow seems to have fallen… taken Dec 06, 2016 @ 17:16
#legocityadvent Day 7: fireman & rocking fire girl are not entirely sure what has arrived today….wreath on a fence? taken Dec 07, 2016 @ 16:26
#legocityadvent Day 8: fireboy talking to ice hockey playing Lego man taken Dec 08, 2016 @ 18:22
#legocityadvent Day9: ice hockey boy & fireboy discuss what has arrived in the city today… taken Dec 09, 2016 @ 16:45
#legocityadvent. Day 10: girl hockey player joining boy hockey player on the ice… taken Dec 10, 2016 @ 10:46
#legocityadvent Day 11: a tree with lights arrives in the city taken Dec 11, 2016 @ 10:13
#legocityadvent Day 12: Today the city has gained a decorated street light which rocking firegirl has immediately appropriated… taken Dec 12, 2016 @ 17:37
#legocityadvent Day 13: bearded firefighter not entirely sure what the city maintenance guy is doing but has come to say hello anyway. taken Dec 13, 2016 @ 17:05
#legocityadvent Day 14: yesterday's city maintenance guy now has an explanation for his control unit – today he has a drone. taken Dec 14, 2016 @ 17:36
#legocityadvent Day 15: everyone crowds round the new shop that has appeared in the city taken Dec 15, 2016 @ 18:31
#legocityadvent Day 16: maintenance man gets another drone to explore with… taken Dec 16, 2016 @ 08:35
#legocityadvent Day 17: everyone crowds round to admire the new market stall. taken Dec 17, 2016 @ 14:28
#legocityadvent Day 18: Bearded fireman & maintenance guy are not sure about the new gentleman who has arrived…why is he in breathing gear & what is he carrying… taken Dec 18, 2016 @ 12:11
#legocityadvent Day 19: answer to yesterday provided by a pizza oven today. Strange guy is a pizza cook in breathing apparatus. taken Dec 19, 2016 @ 17:33
#legocityadvent Day 20: today the city folk gain two cash machines they think…. taken Dec 20, 2016 @ 17:47
#legocityadvent Day 21: today the good folks of the city finally get a Christmas tree. taken Dec 21, 2016 @ 08:55
#legocityadvent Day 22: today the city folk are joined by a husky complete with feeding trough.. taken Dec 22, 2016 @ 14:04
#legocityadvent Day 23: today Santa's sleigh arrived but no sign of the red-suited guy himself taken Dec 23, 2016 @ 12:35
#legocityadvent Day 24: today Father Christmas has finally arrived. taken Dec 24, 2016 @ 08:43